MinneStories™

We record and share families’ stories about their own, personal experience of being impacted by newborn screening. Through the power of storytelling, we seek to inspire hope and build community through shared experiences.

This is a collection of 2-5 minute clips, each featuring two people who know each other talking about life after a newborn screening diagnosis. We record a 40-minute interview and edit it down to a shortened clip to share on our website, social media platforms, and the community.  
 

Featured MinneStory™

Kinda a Nice Vegetarian Diet

Blood spot screening | 4:48

Recorded on October 15, 2018

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Kinda a Nice Vegetarian Diet Audio Text (PDF)

Joe and Becca talk with each other about their non-identical twins, Sam and Grace, who both have PKU. The twins share what living with PKU is like for them and Joe discusses his approach and advice when talking with newly diagnosed families.

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Listen to More MinneStories™

MinneStories™ highlights the impact of newborn screening and the resilience of families by sharing their experiences. Click below to hear our families reveal their personal MinneStories™ with conditions identified through newborn screening:

• Blood spot screening
• Hearing screening
• Pulse oximetry screening

Share Your MinneStory™

If you would like to share your newborn screening MinneStory™ with us, please fill out our submission form. We look forward to hearing from you!

Order Materials

If you're interested in sharing materials with families, please feel free to print one or both of the PDFs below. You can also order the materials (for free!) through our Orderable Materials Form.

• Listen to MinneStories™ - This is for families who are going through the process of diagnosis and beginning the journey of seeking out support and resources.
• Share Your MinneStory™ - This is for families who are farther along in their journey and in a position to share their own MinneStories™ with others to help cultivate community.

Contact us

Do you have a question about MinneStories™? Please feel free to email us with your questions and we will be happy to help!

Press & Media

MinneStories™: Stories of Minnesota's Newborn Screening Program | StoryCorps

Everybody's a Storyteller | University of Minnesota Alumni Magazine

Acknowledgements

We wish to extend our thanks to the families who have shared their MinneStories™ with us about the impact of newborn screening. We would like to thank StoryCorps Legacy, which inspired this project and trained us. It would not be possible without the hard work and continued efforts of the students of The Institute of Production and Recording and Sudden Media who help us to produce the content that you listen to. Finally, we would like to thank our listeners for creating greater awareness about public health by sharing these MinneStories™.