Newborn Screening MinneStories: Blood Spot Screening - Minnesota Dept. of Health

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Blood spot screening

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Kinda a Nice Vegetarian Diet

Becca and Joe

Blood spot screening | 4:48

Recorded on October 15, 2018

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Kinda a Nice Vegetarian Diet Audio Text (PDF)

Joe and Becca talk with each other about their non-identical twins, Sam and Grace, who both have PKU. The twins share what living with PKU is like for them and Joe shares his approach and advice when talking with newly diagnosed families.

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Chocolate Everywhere

Becca and Joe

Blood spot screening | 3:45

Recorded on January 6, 2017

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Chocolate Everywhere Audio Text (PDF) (not yet available)

Paula and her daughter, Andrea, discuss life living with PKU. They share memories from Andrea’s childhood that were impactful and shaped their approach to normalize the ways PKU impacted her life.

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Fierce Advocate

Rae and Dr. Nelson

Blood spot screening | 4:45

Recorded on June 27, 2016

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Rae and Dr. Nelson describe their journey with her son's diagnosis of sickle cell disease and how it has shaped her into the advocate she has become today. Rae's son was found to have sickle cell disease on the newborn screen.

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Our Normal

Ashley and Jeremy

Blood spot screening | 3:46

Recorded on July 17, 2016

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Ashley and Jeremy share how taking things one day at a time has helped their family maintain a "normal life" after their son, Carson, was identified with cystic fibrosis through newborn screening.

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Gabe-orade

Jen and Gabe

Blood spot screening | 2:24

Recorded on June 21, 2016

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Gabe-orade Audio Text (PDF)

Gabe talks with his mom, Jen, about the ways he has incorporated MCAD into his life. Jen shares her advice for other families dealing with this disorder, but also the many ways they are just a typical family.

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Backstage Pass

Rachel and Marsha

Blood spot screening | 3:14

Recorded on June 17, 2016

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Rachel and Marsha discuss Rachel’s son, Cooper, and his diagnosis of MCAD deficiency found through newborn screening. Rachel shares her story of learning about her son’s diagnosis, a visit to the ER, and the opportunities that exist for him in spite of his diagnosis.

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The Blind Eye & the Worrywart

Nicole and Travis

Blood spot screening | 4:27

Recorded on May 19, 2016

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The Blind Eye & the Worrywart Audio Text (PDF)

Nicole and Travis, parents of two girls with cystic fibrosis (CF), talk about their different approaches to parenting. They talk about the girls' unique personality traits that help them tackle this condition along with their son's determination to cure CF for his sisters.

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Amazing Little Boy

Adam and Jenni

Blood spot screening | 4:52

Recorded on April 8, 2016

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Amazing Little Boy Audio Text (PDF)

During the midst of their son’s medical crisis, Adam and Jenni learn through newborn screening that he has a serious metabolic disorder. Listen to their story to hear them share their experience and how time has provided a new outlook of hope and perspective for their family.

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Just the Way You Are

Sophia

Blood spot screening | 2:25

Recorded on March 26, 2016

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Just the Way You Are Audio Text (PDF)

Chris and Karen discuss the day their daughter, Sophia, was born and the guilt felt when first learning about her disease. Now, years later, they focus on how amazing Sophia is and the joy she brings to their lives.

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Every Label, Every Time

Blood spot screening | 2:05

Recorded on March 17, 2016

Sarah and Evan
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Every Label, Every Time Audio Text (PDF)

Sarah and her son, Evan, discuss Evan's diagnosis of galactosemia. They describe the importance of finding food that is safe for him and how grocery shopping is no longer a simple activity.

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