Newborn Screening Program Information: Announcements - Minnesota Dept. of Health

Newborn Screening Information:
Announcements


Newborn Screening Advisory Committee Meeting October 2021

The Minnesota Advisory Committee on Heritable and Congenital Disorders will hold their next committee meeting on Tuesday, October 26, 2021 from 1-3 PM. This meeting is open to the public.

If you would like to submit written comments related to agenda topics, please send to health.nsac@state.mn.us. Communications will be shared with committee members for their review.

Due to the current COVID-19 pandemic, the meeting will be virtual using Microsoft Teams. You do not need any special software to join this meeting, but using a Chrome or Edge browser is recommended for best experience.

Click on “Join Microsoft Teams Meeting” below to participate:
Join Microsoft Teams Meeting

Please visit the our webpage for more information about this committee:
Newborn Screening Program Information: NSAC Committee

Newborn Screening Legislation Passed

On June 29th, 2021, two pieces of legislation were signed into law involving newborn screening.

First, the newborn screening fee outlined in Minnesota Statute 144.125 has increased. Testing of all newborn screening specimen cards received on or after July 1, 2021 will be billed at $192 each. The last fee increase was eight years ago, and in that time, six conditions have been added to the Minnesota newborn screening panel. This new fee will help further support the important role newborn screening plays in protecting the lives and health of children in our state. For questions related to the fee increase, please contact Jill Simonetti at 651-201-5469 or Jill.Simonetti@state.mn.us.

Second, the Vivian Act was passed authorizing MDH to educate pregnant women and their healthcare providers about a condition called congenital cytomegalovirus (cCMV). This legislation also requires that the Advisory Committee on Heritable and Congenital Disorders review cCMV as a possible candidate condition for inclusion on the newborn screening panel. This Committee has a defined process for reviewing candidate conditions, which can be found at Candidate Condition Review Process.

For questions related to cCMV screening and the Advisory Committee process, please contact Sondra Rosendahl at 651-201-5922 or Sondra.Rosendahl@state.mn.us.

Newborn Screening Advisory Committee Meeting October 2020

The Minnesota Advisory Committee on Heritable and Congenital Disorders will hold their next committee meeting on Tuesday, October 6, 2020 from 1-3PM. This meeting is open to the public.

Due to the current COVID-19 pandemic, this will be a virtual meeting using Microsoft Teams. You do not need any special software to join this meeting, but using a Chrome or Edge browser is recommended for best experience.

Click on “Join Microsoft Teams Meeting” below to participate.
Join Microsoft Teams Meeting
Conference ID: 223 662 275#

Please visit the NSAC webpage for more information about this committee:
Newborn Screening Program Information: NSAC Committee

Newborn Hearing Screening Advisory Committee Meeting August 2020

The Newborn Hearing Screening Advisory Committee will hold their next committee meeting virtually on August 19, 2020. This meeting is open to the public and a link to the meeting will be shared soon. Please visit our advisory committee’s webpage for more information and to review the meeting agenda:

WebEx Link: https://minnesota.webex.com/minnesota/j.php?MTID=m13b6e432da5a3fb6d557a88895e5a2dc

Meeting number: 146 679 6278
Meeting password: KRmYPdmX273

Audio connection:
+1-415-655-0003 United States Toll
1-855-282-6330 United States Toll Free
Global call-in numbers
Access code: 146 679 6278

CART and ASL Interpreting services will be available to participants. Members who would like to use CART and/or ASL interpreters will need to open both the WebEx meeting and access to CART and/or ASL Interpreters in a separate tab. 

Access to accommodations can be found here:

Newborn Screening program Information: NHSAC Committee

How do I get my sickle cell trait results to meet NCAA requirements?

Minnesota has been screening for sickle cell disease since 1988. The testing also detects healthy babies with sickle cell trait and other hemoglobin traits. Unfortunately, MDH was required to destroy the blood spots and test results for all individuals with blood spots collected before August 1, 2014. The only exceptions are if a parent provided written consent for long-term storage and use of her or his child’s blood spots and test results. 

We understand that the NCAA requires student athletes to provide their sickle cell trait status before participation in intercollegiate athletics.

The following options are available to collegiate athletes:

  • Contact medical records at the hospital where you were born to request a copy of your newborn screening results. It is possible they no longer have the test results.
  • Check with the clinic where you received medical care as a baby to see if they have a copy of the results. It is possible they do not have the test results.
  • Make an appointment to get a blood test (hemoglobin electrophoresis) through your primary care provider or student health service.
  • Discuss waiver options with your college athletics department.

We hope you find this information helpful and wish you great success in college! If you have additional questions about sickle cell trait testing, you can speak with one of our genetic counselors at 651-201-3548 or email us at health.newbornscreening@state.mn.us.

Newborn Screening Continues During COVID-19 Outbreak

Minnesota Department of Health guidance on March 25, 2020 through a Health Alert Network Advisory Notice, affirmed that newborn screening and all follow-up (for bloodspot, hearing screening, and critical congenital heart screening) should continue during the COVID-19 outbreak. The American Academy of Pediatrics has also issued an official statement supporting the importance of continuing newborn screening and follow-up according to existing best practice goals and standards.

Guidance on Newborn Screening during COVID-19

Though scheduling availability and location may be altered in some communities to allow for social distancing, most clinics are still prioritizing and scheduling newborns who need follow-up testing. Please contact MDH-Newborn Screening at 1-800-664-7772 or health.newbornscreening@state.mn.us for additional resources if needed.

Advisory Committee on Heritable and Congenital Disorders - Vacancies

The Minnesota Advisory Committee on Heritable and Congenital Disorders has upcoming vacancies for terms beginning January 2020 and ending January 2024. If you are interested in applying, please visit our webpage for more information:

How Do I Become an Advisor on the Newborn Screening Committee?

Newborn Hearing Screening Advisory Committee Meeting November 2019

The Newborn Hearing Screening Advisory Committee will hold their next committee meeting on Wednesday, November 20, 2019 from 1 – 4p at the Wilder Center, auditoriums A and B. The Wilder Center is located at 451 Lexington Parkway North, St. Paul, MN 55104. This meeting is open to the public. Please visit our advisory committee’s webpage for more information:

Newborn Screening Program Information: NHSAC Committee

Advisory Committee on Heritable and Congenital Disorders Meeting October 2019

The Minnesota Advisory Committee on Heritable and Congenital Disorders will hold their next committee meeting on Tuesday, October 15, 2019 from 1 – 4p at the Wilder Center, auditoriums A and B. The Wilder Center is located at 451 Lexington Parkway North, St. Paul, MN 55104. This meeting is open to the public. To request ADA accommodation, please contact Sondra Rosendahl at 651-201-5922 or sondra.rosendahl@state.mn.us. Please visit our advisory committee’s webpage for more information:

Newborn Screening Program Information: NSAC Committee

Advisory Committee on Heritable and Congenital Disorders April 2019

The Minnesota Advisory Committee on Heritable and Congenital Disorders will hold their next committee meeting on April 23, 2019 from 1-4 pm at the Wilder Center, auditoriums A and B. The Wilder Center is located at 451 Lexington Parkway North, St. Paul, MN 55104. This meeting is open to the public. To request ADA accommodation, please contact Sondra Rosendahl at 651-201-5922 or sondra.rosendahl@state.mn.us. Please visit our Advisory Committees webpage for more information:

Newborn Screening Program Information: NSAC Committee

Important Program Update: Out-of-State Transfer Recommendations

April 8, 2019

Minnesota Newborn Screen Recommended Prior to Out-of-State Transport:

The Newborn Screening program is changing our request of birth facilities regarding infants who will be transferred to neighboring Neonatal Intensive Care Units (NICU) and Special Care Nurseries (SCN) in South Dakota, North Dakota, Iowa, and Wisconsin.

Babies screened in Minnesota are now checked for more conditions (X-ALD, Pompe disease, MPS I, and SMA) than in our bordering states (ND, SD, IA, WI). Because of these differences in screening panels between Minnesota and surrounding states, we are now requesting that all newborns receive a Minnesota newborn screen prior to out-of-state transport. Obtaining a pre-transport specimen assures that your patients will benefit from the most comprehensive screening available.

New Out-of-State Transfer Recommendations:

Effective immediately, we are asking all of our hospitals that routinely transfer out-of-state to start collecting an initial newborn screening specimen on infants (regardless of collection time) before transport to NICUs in South Dakota, North Dakota, Iowa, and Wisconsin. The recently added disorders are not affected by collection before 24 hours. 

Additional Process Information:

  • If the pre-transfer specimen was collected before 24 hours of age, we will continue to follow-up on these transferred infants to document that a specimen is also collected after 24 hours of age. This will ensure each child has a complete screen (see the attached document that outlines this).
  • In the event the baby is too ill/critical to have a specimen drawn before transport, a newborn screen can be ordered by the primary care provider once the baby is back in MN. 
  • In the event a specimen is abnormal for any of the screened conditions, our genetic counselors will contact the receiving hospital to coordinate additional follow-up and alert local physicians if baby has already left the NICU.

As always, we appreciate your work in making sure Minnesota babies receive every opportunity for a healthy start.  If you have any questions regarding this matter, please contact Amy Dahle at 651-201-5459 or amy.dahle@state.mn.us.

View the A Complete Blood Spot Screen: <24 hour Specimen and Post-transfusion (PDF) for more information.